The Ball 200_??

We are trying to begin a process of organizing a ball! Not sure when, as time is flying, but watch this space!!

Apart from raising funds for the MPS society the aim of the ball is to say a big Thank You to everyone who has supported us, especially now that the boys are finally receiving ERT (enzyme replacement therapy).

If anyone knows of a venue or a very kind marquee company or sponsor(!), there are many people who would like to join our celebrations and venues only seem to be large enough for 250 people. My thinking is that we would like about 300. If anyone knows anything that would be of any help-please contact me!!